Name that Malady!

Photo: Something in My Eye

Do I have Onchocerca volvulus, or is there just an eyelash stuck in my eye?

All Other Martyrdom is Naught before Mine

This harsh, persistent pain I have, O Doctor, tell me, please,
Can it be cured by some cheap salve, Or have I some disease
Beyond the scope of modern meds And pessaries and pills,
Like something Biblical in scope, One of those icky ills
You read about in magazines, See movies-of-the-week
About so frightful that you Realize that you’re a freak
To have such creepy plague, To be afflicted so, withal,
That even specialists will cringe And dash off down the hall
To hide behind their file Cabinets until you leave
Because they’re overwhelmed by the Bizarreness they perceive
Upon your person when they see Disturbingly displayed
Such malicious malady It makes them sore afraid.
What say, Sir Doctor? You detect My source of agony?
Who suffers worse than martyrs who Have papercuts, like me!

Photo: Open Wide!

Well, shut my mouth! Maybe that nasty odor wasn’t Trimethylaminuria, but don’t just give me the brush-off.

Tough as Nails

Photo: A Little Rusty, Maybe

I may be getting a little rusty and weathered, but I’m just happy to be aging.

I’m managing to age. I’m glad. Though I’ve never had such a deep fall into my depressive and anxious episodes as to become suicidal, I’ve had times when I feared it might be hard to keep living, instead retreating into agoraphobic hiding in perpetuity. Those times, I am so very thankful, have been rare. They’re long past, too.

A couple of months ago, though, I had the first of some subtle indications that my longtime sense of shining wellness might have some tiny cracks forming in its foundations. A creeping unease entered into my confident good cheer. When I was first diagnosed and treated back then for my anxiety and depression, I had the strange sensation of learning what it felt like for my symptoms to recede, one by one, and as they did, I realized that the way I’d felt and the whole way I’d understood myself for all of my life before then, was in large part a collection of symptoms. Underneath it all was a different, happier and healthier self I have relished getting to know as I was unmasked by this progress.

I won’t lose that self again readily. I made tracks for the doctor’s office to talk about my options, because I don’t ever want to be held prisoner in that not-me state again. We’re checking my general health, the doctor and I, and plotting a course for reinforcement of the new-and-improved me while combating those things that threaten in any small way.

My greatest reassurance comes from living with the life partner who never ceases to love and support me for better, for worse, in sickness and in health. Backing him up in the task are the many relatives and friends upon whom I also depend. But I’ve come to realize that I have another resource on which I’ll be depending in this adventure. Surprisingly, that defender is me.

See, I understand now what I didn’t and couldn’t back in the day: I could never have made it to my first depressive crash and subsequent healing if I weren’t pretty tough inside. I have always thought of myself as shy, timid and easily cowed, but the truth is that if everything that seems ordinary and normal to other people in the everyday scheme of things—meeting a new person, answering the phone, taking a class—seems infinitely harder to a person with anxiety disorder or the chemical imbalance that causes chronic depression, then I must be stronger than I thought.

I’m planning to win. I don’t expect it’ll happen overnight, let alone permanently, but with my personal army at my back and the right attitude and resources of my own, I think I have a good shot at it.

Photo: Tough as Nails

For a marshmallow, I’m actually tough as nails.

Yet More Advice-to-Self

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Meditation Medication

digital illustrationHealth is a wildly, weirdly, wonderfully complicated state. Both physical and mental health are astoundingly omnidirectional networks of intersecting matrices and random points; genetics, environmental influences, accidents, allergies and so much more come together and continue to change over the life of any one person. Furthermore, these meet in an intersection of the two networks (mental and physical) in every single person, that it’s nothing short of miraculous that any of us human conglomerations actually survive and have relatively good health.

It’s completely unsurprising, then, when something or other does break down or fail to be really perfect when it comes to health matters. Thank goodness there are more and more answers and helps for us when it comes to such moments of concern. But for every solution, there are shortcomings and side effects, and we still have to make choices and experiment, test and try and hope.

I’m one of those relatively rare creatures blessed with generally outstanding and reliable good health. I’ve never had a broken bone; I’ve had all of three stitches in my whole life, and I’ve never worn a cast or a brace unless you count the kinds I could buy in a neighborhood pharmacy for an achy hyper-extended knee or a fiddly fingertip whose little cut made a mockery of my hale-and-heartiness when I was whimpering over the pain every time I’d bump it. My various moles, cysts, and bumps have all thus far been benign and manageable. Even those more significant elements that might affect my function and longevity are so far pretty reasonable to deal with and don’t require enormous amounts of care just yet.

The essential tremor, noticeable since I was about ten or twelve, has never gotten so obtrusive that I have had to do anything for or about it. The mitral valve prolapse (heart murmur) is so mild that it went unnoticed until I had a regular physical exam from a person who, as pure chance had it, was conducting a study of that specific condition and so was attuned to its unlikely presence. Very minor hypothyroidism like mine is easily kept at bay with very little medicine (mostly pretty common ones at that) or monitoring. I am especially grateful that thus far there is no indication that the Parkinson’s Disease that poses as the only true black sheep of my family has not to date taken up residence in my body.

This is not to say that I have no inkling of any of the irksome and unpleasant effects of imperfect health. I’ve come to recognize the recurrent, and in some cases, chronic, annoyances and inconveniences that come with allergies. While mine have remained moderate and turn out to be treatable if not controllable, I figured out after getting some help that they had had a far greater control over my daily life and well-being before that time than I had realized. And as I’ve said here before, I have had my adventures with Spasmodic Dysphonia, clinical depression, and anxiety; these had larger influences on me and, therefore, those around me, by a magnitude of difference.

What arises every time I contemplate these things, all of which are in my own life more survivable and treatable than I know that they can be for others, is the notion that as a typically complicated human health exemplar, I still have to work continuously to discern what combination of the tangible and medical kinds of interventions and treatments with those more intangible approaches of meditation, activity, and trust—call it faith, hope, prayer, optimism, or attitude adjustment, it’s all fodder for feeling, and possibly, getting, better—will suffice to keep any of my anomalous conditions in check.

Thus far, the answer for me has been a shifting combination of the tangible and the intangible; I think that’s how it works for most people. My personal recipe for success is neither absolute nor permanent, any more than my personal state of being is fixed or unchangeable. Health, both physical and mental, changes rather constantly over a life span, and the longer one lives the more cycles and spikes of change are likely to occur during the stretch. What, then, can I do?

Keep trying. What combination of body-chemistry-altering substances serves my needs at the moment? They might well be outright commercially made and sold and officially, doctor- or nurse-administered drugs, but they can also easily be homeopathic or folk cures, foods or herbs or numerous other things that I’ve discovered through trial and error suit my physical and mental well-being. The same can be true of physical therapy: it might be specific exercises recommended to me by my doctor or other trusted medical and health experts, or as is often the case, it can be a set, series or group of activities that simply make me feel closer to my optimal conditioning. Nowadays, as always, I find myself using quite the mixture of these helpers to suit my specific needs and wishes for better health and happiness. For me, that means a full combination of what could be loosely classified as medication and meditation.

I can’t begin to tell you how that works or is explained scientifically. Some of it I’d bet good money can’t be clarified in scientific terms. But experientially, that I can tell you: I feel pretty good. I get the occasional sneezes or headaches, and there are times when it irritates me, yes, that my vocal cords are recalcitrant and unreliable. I’d definitely prefer if the shadow of Parkinson’s hied itself off my family’s shoulders, most especially Mom’s, and would never try to sneak up on me later despite any efforts on my part to ward it off if possible. But let’s be honest. Right now I feel pretty good, and that makes me happy. Whatever I’m doing or not doing, taking or not taking, it seems to be working.digital illustration

Foodie Tuesday: Sweets, Treats & Healthy Eats

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What’s good for my heart might be as much a spiritual question as a nutritional one, even at table. Mmm, BBQ!

I am one of those silly people who don’t think the title’s terms are mutually exclusive. Call me a cockeyed optimist (because, well, I am), but it also happens to follow a certain logic if I tell you that not only do scientists and nutritionists and doctors sometimes concede that what was once thought the epitome of healthful behavior and ingestion is now believed to be quite the opposite, or that things we once considered horrendously dangerous and likely to contribute to the destruction-through-dining of the entire human race might not be quite so terrible after all. Not to mention the recognition that each person’s body type, genetic makeup, chemistry, environment and so forth all make him-her-me unique in the ways we suffer or benefit from our diets.

So I will refrain from posting—on Tuesdays or otherwise—ruminations on what is Always or Never good for anybody. Besides which, as you well know on visiting with me even twice on a Tuesday, even my own two-person family household has vastly different ideas and tastes and preferences when it comes to what we simply like or don’t like to eat and drink. Thankfully, we can work out those differences in many ways, so the reality of our widely divergent food loves has relatively little impact on our love of being together.

This is, among other things, a reason that it’s nice to have something to amuse each member of the party at table, and let each choose his or her own combination of dishes, drinks and delectables. I am well aware that having no children in the family may be seen as a dodge of the most difficult issues in this regard, because as a supposedly responsible adult one might be expected to see that every child present is getting reasonable nutrition at all times, and hopefully, also building practices and habits that will lead to her continued healthy living. But of course one can point to numerous folk who have in various ways had the ability to subvert the rules and live and thrive. And of course, I live with an adult who has managed to do so despite having been raised to eat ‘right’ yet arriving at adulthood with a general dislike of much of what is, was and perhaps ever shall be considered ‘right eating’: he doesn’t like very many vegetables at all, and could probably survive on pizza, mac and cheese, hamburgers and fries, and those with little deviation from their simplest forms, especially preferred without annoying vegetable side dishes or icky sauces. While I enjoy nearly all of the foods he does like, I’ll also eat lots of other things gladly, including the veggies and sauces and many more things he would far rather not.

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Cucumber, all by itself, is refreshing; as a simple salad made with rice vinegar, honey, fresh dill and black pepper, it’s also delicious.

Does this in any way make him less intelligent or well-bred or good or admirable? It most certainly does not, any more than it confers sainthood upon me. It may be true that ‘the heart wants what it wants’, but baby, I’d say with ten times the conviction that the gut has powerful reign over our existence—stomach, tastebuds and brain in concert, that is. And I’ll bet you dollars to sugary, fat, wonderful donuts that this alone will not determine who among us lives well, survives long and dies contented. So I eat my vegetables, more often than not, alone even when eating at the same table as my beloved. He will order the same classic meat-and-potatoes food a bit more frequently than I will. We will both worry about our health and weight and shapes from time to time and each of us, occasionally, do some little thing or other to alter them, together or individually.

All I can say for certain is that I hope neither of us will ever lose interest in food and drink altogether or, especially, lose the ability to eat and sip much that we enjoy, because those tastes and those communal activities and shared experiences give us pleasure that is as beneficial to health and happiness as the nutrients themselves can ever begin to be. That makes Foodie Tuesday here a perfect day to celebrate a very special cook, hostess, family member and dear friend, whose birthday is upon us. Happy birthday, Mom Sparks! Your good cooking and your graciousness, both at table and all around, make you a Sweet Treat yourself—and helped to shape, unquestionably, the marvelous man with whom I am privileged to dine nearly every day, no matter what we choose to eat and drink.

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‘Green Banana’ Pudding: ripe bananas and avocado blended until smooth with fresh lime juice and zest, honey, butter (of *course* I’m not kidding), almond extract, and a pinch of salt. A few toasted coconut chips on top add just a hint of crunch. Banana-lime happiness in a spoon!

Angels of Mercy

graphite line drawingThere are a lot of distinguishing features that we associate with Goodness, in the general sense of that construct. There are the usual ethical and even moral qualities we impute to a person or action or event in our humanist or religious ways: honesty, justice, kindness, compassion, hospitality, wisdom, patience and other such characteristics are almost universally recognized as positive and admirable. And while we can sometimes recognize these things in our fellow mortals, many of us find it easier to represent them in our minds’ eyes as some kind of super-beings that transcend human limitations, because it’s hard to imagine much of this happening or being sustainable in the hands or lives of mere people.

So we have our superheroes and our faeries, our special agents and goddesses, avatars and angels. But we’re still either too limited in our mental vocabularies or perhaps simply a little bit too insecure and egocentric to imagine or depict much that is Good without giving it a recognizable hint or ten of humanness. We make our gods in our own image, unable to picture them as truly different enough from ourselves to be genuinely Other and unique. We need to feel a concrete connection if we’re to make any sense of our own ideals.

And there’s nothing wrong with that, to my mind. How can I talk about the sweetness of a ripe pear with someone who has no sense of smell or taste? What it feels like to stand mid-stream in an icy creek with someone who has no legs or is a lifelong quadriplegic? How could I hope to discuss a complex topic with a deaf person from another country? We have to have some little commonalities, at least ones that we perceive as such, for us to have any kind of relationship, including the philosophical or emotional or spiritual.

So we, thankfully, have our Helpers, our unseen supporters and caretakers and watchers and guides, and we give them features that help us to understand and trust them. The other day when I was drawing I was thinking of a friend who, as I write this, is undergoing cancer treatment. Many friends and relatives and acquaintances have done so in times past, and many will yet again, and I think of them in their times of need and send, in my own way, my love and hope and concern, but most of them cannot use anything tangible that I have to offer. I think for cancer patients, my versions of angels would most certainly be beautifully smooth-headed creatures.

I am no surgeon, healer, scientist, caregiver or therapist of any sort. If you live close enough you might get some homemade chicken soup from me, or an armful of flowers from my home meadow, or a little note, but I have no cure to offer, have not even enough encouraging wisdom of my own to get you through the day better. What I do have is my own vision of what I would hope to have at my bedside or hovering around me as I tread any dangerous paths, a sort of gracious, singing, laughing and–when I need a modest and quiet companion who understands the sorrow of it all–gently embracing angel of mercy. And my particular versions of such beings work in force, and also make house calls, so I will gladly send regiments of them in all their shining, vaguely human, terribly purposeful Goodness to watch over all.digital illustration